Seeking Individuals And Caregivers of Those Diagnosed with Primary Hyperoxaluria (PH1)


Hey there!

We are looking for adult patients and caregivers of adolescent patients diagnosed with Primary Hyperoxaluria type 1 (PH1) to complete a 60 minute telephone interview paying $100.00 to share their story living with PH1.

PLEASE note filling out the short questionnaire below does not offer any compensation.  It is just so we know if you are a good fit for this study.
Share your story!

This is an important study and an exciting opportunity for the voice of individuals and make an impact with the future of research. 

Qualifications (You must meet the following criteria to qualify for this amazing study)

• Patients 12 years of age and older or with diagnosis of PH1 confirmed by generic analysis
• Caregiver of children 6 to 17 years of age with diagnosis of PH1 confirmed by generic analysis
• Normal or abnormal kidney function, not currently requiring dialysis or transplant

YOU must fill out the short questionnaire below and hit submit to be considered

Who Are We (Echo Project Management Group, Inc.)

  • We are a leader in connecting patients with recognized medical Research Studies
  • We are dedicated to being up front and open with you. If you have questions just ask!
  • We are committed to protecting your personal data and are a HIPAA Compliant Entity

Participants Will be Compensated for Their Time

If you meet the above qualifications we want to hear from you! Please enter the requested information below and you will be contacted by one of our representatives

We (ECHO PMG) will comply with all US laws in protecting your personal data, and also in accordance with BHBIA guidelines and the MRS/EphMRA, PBIRG and ABPI codes of conduct.   Your responses will be collated with those of other patients and presented to our client in aggregated or anonymous form; your identity will not be revealed.  Your responses will be otherwise confidential and will not be used for any other purposes or disclosed to any third party without your approval.